Thursday, June 25, 2020

A First

I’m writing this to document and to remember. 

Yesterday I had maybe the biggest scare of my life.  When I went in to “release” my kids from their rest time Eli said “Hannah’s sleeping with her eyes open”. Yes, it sounded odd. So, I turned on the light and went over to Hannah. She was unresponsive and was obviously seizing. I quickly lifted Eli off the soiled  bed and told him to get Keith. As I continued to shake her, he dropped the phone and came in and picked her up and said “we’re leaving”. It was at this point that I started crying and couldn’t quite figure out what to do except hold my daughter while Keith got everything together. 

Today she is back to normal. We don’t know how long she was unresponsive but I don’t expect it was long. Eli was beside her the whole time and showed great concern. 

After Keith and Hannah left I melted into a puddle on the floor. Eli immediately knew there was something wrong and told me he was praying for Hannah in his brain. (Oh. My. Heart). Suzi was crying but I don’t think it was out of concern for Hannah. Her little brain couldn’t comprehend the complexity of the situation. 

As we await next steps from the neurologist and check the box of one more thing CMV has added to my dear child’s life, I thank God for his control over my life. I know I really have no say in anything that happens to my children but I’m thankful I have a Father that does and wants good things for them. ❤️

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