Wednesday, May 4, 2016

Typical, Not Typical

Life moves at a steady pace when you have 2 little ones and are expecting another, a little too steady in my opinion. 

Our days and weeks are full. We have at least 1-2 therapy appointments (in home) a week and then at least one doctors appointment, maybe more. 

One thing that has been happening (not intentional planning on my part) is Monday's are usually free, which is nice. It gives the kids and me a day to come down off the weekend and just play at home, which I think we all need. 

There are times when I think we look so typical and other times I know we don't. 

Yesterday was one of those days. Hannah had her first booth hearing test. The one she's awake for, has to let us know if she hears sounds, knows where they are coming from, etc. 

I went in to this appointment not expecting much. I didn't think Hannah would perform and we would probably leave with little data. Well, it was rough, because what 19 mo old wants to sit and just turn their head for a sound? But she did come out with some data. 

Her hearing has declined. 

We are not sure exactly how much, but from what the test showed, a survey I took about Hannah and the fact that she isn't readily adding new words to her vocabulary all point to that conclusion. 

Not typical. 

So her doctor wants to move with a cochlear implant evaluation in the next month. This means meeting with an ENT, a speech therapist, a social worker and someone else to all evaluate Hannah and see if she is a candidate. I'm sure it will also mean scans of some type because they need those to make sure everything is good internally for surgery. 

I'm trying not to get overwhelmed. 

And pray that this baby (who is due in 8 weeks) is flexible. 😉

We knew that this would happen all of a sudden and yes it's not great timing for our family, but I'm trying to take it in stride. Who needs "nesting time"
for a 3rd child anyway??

The more Hannah grows and progresses I see the perfection (if you want to call it that) in Eli. 

The fact that his feet move correctly.
His hips are straight. 
He has good balance. 
He did things, like walking, on time (even though I thought he was behind). 
He can hear me when I whisper. 
He calls to me from another room. 

And it points out how atypical Hannah is. 

Keith reminded me last night that this is why we are doing so much for Hannah, so she can have the best shot at a mainstreamed, normal life. His and my prayer is that if we put extra effort in now it will benefit her later. 

Hopefully. 


"Fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand."
Isaiah 41:10

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