A new year, a new school, a new start. I’m sure I’ve written about all of those, but this time it’s a new drug.
As many of you know Hannah has been taking medicine to prevent seizures for over 18 months. While the med is helping breakthrough seizures (ones that happen during the day, and cause her to be unresponsive) she is still having seizures while sleeping.
Small ones, 1-2 seconds in length.
But, these small jolts to her brain are no good.
They interrupt her sleep, cause her to not enter deep sleep and not store her memories.
Before Christmas Hannah was screened for a trial drug to help with this specific type of epilepsy. As of now there are no drugs that target these little nighttime jolts.
Yesterday we were told she was accepted.
Tomorrow we start the medicine.
I’m anxious, I’m doing so many things around the house to keep myself occupied and Hannah is completely unaware.
As always, she will do what is asked tomorrow and we will pray that this medicine starts to heal her brain.
Since this is a drug trial there is a 30% chance she will receive a placebo.
Will you pray she receives the real drug? Right now, as you are reading this?
I am thankful for this opportunity, for the medication and the doctors and the smile on my daughters face as I dropped her off this morning. I believe that God’s timing is perfect and trust this drug trial is part of that.
God’s way is perfect. All the LORD’s promises prove true. He is a shield for all who look to him for protection. Psalm 18:30
