Friday, August 21, 2020

Wake me up when it’s all over

Week one of online learning is over and let me tell you this mom is beat! 



I know, I know I need to relish all the at home time I’m getting with my kids. These days are fleeting and isn’t it a joy to stay home and teach, no make sure your child is learning?? 

Everything outside of me is saying “embrace it”, “grow closer to your kids through it” and more. 

That’s not happening here. 

My kids are once again at 3 different schools. Eli is homeschool hybrid, 2 days at school, 3 days homeschool. Suzi goes to preschool 3 mornings a week and Hannah is a public school virtual learner. Yes, my head is spinning. 



We decided to homeschool Eli this year, because online learning was tough on him (& me) in the spring. I switched Suzi’s days at preschool to coincide with Eli’s schedule and of course when this perfect schedule was made Hannah was planning to be an in-person kindergartener 5 days a week. Oh, that feels like such a far off dream right now. 

I really want to just go to sleep until the world goes back to normal. 

I won’t go into the details of virtual learning for a child with hearing impairment and other special needs, but it’s hard. On everyone. And way too long for her attention span. I have already spoken with her principal more this week than I ever did the last 2 years at her other school. So, they know us. 

Eli’s adjustment to homeschool is just that, an adjustment. It’s not the same, mom has never been my teacher before, and now she is. As much as I want him to learn, I also don’t want to strain our relationship, so we are taking it one day at a time. 

So, back to making this a good time for everyone. I know I can’t just go to sleep and there are little minds counting on me. This pandemic has brought many things into everyone’s life and schedule and for me this year is learning to teach my kids so they can learn. That is my prayer. 

So instead of dropping my 3rd off at preschool and having a leisurely walk through Target I will be learning. Learning how to motivate, learning how to have patience, learning how to teach. No, it will not be perfect everyday, but I know the Lord goes before me and we can do this. And 🀞🏻it doesn’t last the whole year. 






Sunday, August 16, 2020

It’s Been A Week

First of all, THANK YOU for everyone who thought and prayed for us during Hannah’s stay in the hospital. She did so well and took everything in stride. She was literally “tied” to a bed by her hair and never once tried to run or get down or escape. It’s like she just knew what to do. 

So, we arrived around noon Monday, they hooked her up and the monitoring began. By mid-day Tuesday the doctors thought they knew the issue but wanted to observe her another night. There was never a seizure to capture, but there was lots of activity. What was determined, is Hannah has eses seizures. Her brain does not seem to settle or slow down at night which could be the cause of her sleep issues, focus issues, speech issues and so on. Again, left unchecked and unmedicated, could cause neuro-regression. Whew, yes that’s a lot. 

So she was discharged Wednesday having meds and a plan to repeat the EEG in a couple of months. 

Of course, being the guy he is, Keith has been researching since we heard the diagnosis and reaching out to others. If the medicine does indeed help the eses it could be huge for Hannah. 

Right now it’s a lot of wait and see and a lot of H adjusting to medication. Just in time for school to start, haha. 

We know that this was not accidentally found and the Lord has big plans for Hannah. We thank God that this was discovered at age 5. 

Please pray the medicine can be adjusted properly so that Hannah can handle it and it not only prevents seizures but controls the eses. 

Right now we are taking it day by day. 



The steadfast love of the Lord never ceases; his mercies never come to an end; they are new every morning; great is your faithfulness. 
Lamentations 3:22-23

Sunday, August 9, 2020

Escape from Reality

Last week we hit the beach, and I have to say it was such a needed, perfectly timed, getaway. Yes, my kids were there πŸ˜†, no we didn’t go on a date night, but it was perfect. 



As with many of you, 2020 has been hard. Lots of sad endings to school, lots of time missing family and friends, summer camps getting cancelled and more. Having one week to escape our house and hang out at the beach (and a house with a pool) was the a gift from God. 







MawMaw and Poppy came too! 



We ate in every meal and only took short trips to the grocery store. The kids were thrilled to have two other people to play with besides their immediate family (even though Suzi and Hannah don’t portray it in this pic πŸ˜‰). 











Lots of memories made last week. Hannah was healthy the whole time and the kids slept great. What else could we ask for? 

We did return to another scare from Hannah and because of this she will be admitted tomorrow 8/10 for a possible week long EEG. Even though I am not looking forward to it, I am thankful for her appointment being moved up and that we will get more answers about her seizures and what meds she should be taking. 

Thank you for your prayers for us this week and always! ❤️

A few more pics for memory's sake.